tag:blogger.com,1999:blog-1934263569705643558.post282778871485580581..comments2023-04-09T01:40:32.810-07:00Comments on Non-Rem Dreaming. . . why is it so tiring!: How great it would be to stop dreaming all night. . .Auntlello1http://www.blogger.com/profile/11790967892922212438noreply@blogger.comBlogger13125tag:blogger.com,1999:blog-1934263569705643558.post-63507064654278134502021-01-03T15:04:00.885-08:002021-01-03T15:04:00.885-08:00Jen, can you tell me the name of the brand for the...Jen, can you tell me the name of the brand for the Hemp Gummies? I searched it on Amazon, but there are many that go by "Hemp Gummies."Your post describes my experience perfectly (sleep specialists just pushing those drugs you named, fall back on their usual diagnoses). Thanks.Anonymoushttps://www.blogger.com/profile/04554373676395078877noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-72312652851070354902019-08-28T06:07:14.242-07:002019-08-28T06:07:14.242-07:00I've been suffering from undiagnosed epic drea...I've been suffering from undiagnosed epic dreaming for about 4 years now. So frustrating as every sleep specialist refuses to listen to my actual symptoms and continues to look for sleep apnea, insomnia, and narcolepsy. I've also been thrown drugs like nortriptyline (anti-depressent) and Prazosin (for PTSD nightmares) which have terrible side effects and no effect on epic dreaming. BUT! On basically a whim, when I was desperate to try something new, I tried Hemp Gummies (CBD, not actual edibles, available on Amazon and at Bed Bath and Beyond). Amazingly, these have actually helped. I am still having epic dreams, but the quality of sleep and feeling rested shot up dramatically the VERY FIRST NIGHT I took them. Hope they work for others. :) JJen Haegerhttps://www.blogger.com/profile/12314365861869796301noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-25186949602746433062017-11-02T05:06:15.219-07:002017-11-02T05:06:15.219-07:00Hi Talia,
I too dream as I'm waking from or fa...Hi Talia,<br />I too dream as I'm waking from or falling asleep, in addition to all night long. I was diagnosed with epic dreaming over 10 years ago, but the lab basically said good luck getting help because everyone wants to research and cure cancer first (completely understandable, but frustrating nonetheless). The only thing I found that worked somewhat over the years is the old formulation of 12.5mg controlled release ambien. Because it works all night it tamps down the dreaming (or at least my memory of them). I had to come off it when I got pregnant and have tried for a few years NOT to go back on because the withdrawal was so difficult, thus I'm now searching pretty hard for alternatives! Give it a try if you're desperate like I was, and let me know if you find anything new that works!Anonymoushttps://www.blogger.com/profile/07204965396290337637noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-54019275022080629352017-03-08T14:43:05.006-08:002017-03-08T14:43:05.006-08:00I would love to find a solution to this. I have be...I would love to find a solution to this. I have been experiencing this for as long as I can remember - possibly my whole life. Meds make no difference!<br /><br />I also dream as I'm falling asleep and waking.<br /><br />Has anyone found a solution or anything that helped improve their sleep quality? The fatigue and aching muscles are unrelenting - 24/7 for 40+ yearsTalianoreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-44988791350228671482016-04-07T10:52:45.454-07:002016-04-07T10:52:45.454-07:00madam i am suffering from this from 2years.i am wo...madam i am suffering from this from 2years.i am wondering how you are doing your day time work.i am tired all day.pls tell meveerenderhttps://www.blogger.com/profile/01215602322171979831noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-45978656480445937112015-12-31T09:10:16.883-08:002015-12-31T09:10:16.883-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/09215726522471724503noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-27672010684070343042015-12-31T09:10:09.060-08:002015-12-31T09:10:09.060-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/09215726522471724503noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-89000104507078888902015-12-31T09:06:39.306-08:002015-12-31T09:06:39.306-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/09215726522471724503noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-80213878103976883782015-12-31T09:05:55.206-08:002015-12-31T09:05:55.206-08:00This comment has been removed by the author.Anonymoushttps://www.blogger.com/profile/09215726522471724503noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-74242029179073621892013-07-31T16:58:36.819-07:002013-07-31T16:58:36.819-07:00Hi there, I just came across your blog because I w...Hi there, I just came across your blog because I was googling Epic Dream Disorder because I was just diagnosed today with this condition by a sleep specialist. I wanted to continue the discussion since perhaps some scientific progress has been made since you posted originally. I was prescribed Klonopin (Clonazepam) at bedtime to counter the "remembering of dreams" as my doctor put it. You might want to try it! Best of luck -- AlexaAlexahttps://www.blogger.com/profile/05532722566088666669noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-1959911803875982342012-07-17T17:26:59.191-07:002012-07-17T17:26:59.191-07:00I am a Minneapolis, Minnesota resident and was SO ...I am a Minneapolis, Minnesota resident and was SO relieved and blessed to find your blog! I struggle as well with constant dreaming and daily fatigue but had no idea there was information out there, or that there were others or that I had anything addressable other than a mysterious and awful problem. I found you, Auntlello1 through your post on the site medhelp.org in June 2011 and followed the post here just yesterday. I've even read some of your hyperthyroid blog postings trying to find a link between hyperthyroidism and the constant dreaming issue. Personally I have not seen a physician for testing on either because I am afraid my insurance would not cover it. I have since checked in my area for Epic Dreaming Disorder and MEETUP support groups but haven't found any. Have you began any support groups around what your research found to be Epic Dreaming Disorder? Any advocate group? Like you said, we need to find a way to support one another and find others as well as advocate and promote research! All excellent ideas! I admire you for your persistence and courage. You are an inspiration. I look forward to hearing from you.Elias L.noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-13891158674134359842011-11-18T10:10:53.923-08:002011-11-18T10:10:53.923-08:00It would be great, if any one would do it! I have ...It would be great, if any one would do it! I have ben trying to find as much as I can about this, but there isn't much out there other than to say they have found nothing to help.<br /><br />In one of my sleep studies they had me take 3 naps the next day, but even after I told them I was dreaming for 5 minutes (20 min nap, and by the third one it took me 15 min to fall asleep) they told me I was not. Excuse me, but I would know better than you if I was dreaming! <br /><br />So my local "sleep doctors" don't even believe me when I tell them I am dreaming, because I wasn't in REM. <br /><br />There was one time in the summer of 2003 that I woke up refreshed, and the only time I can remember NOT dreaming. We were redoing our entire yard, so I am trying to figure out if out was the extreme sun exposure, gallons and gallons if water I drank, or simply just being so exhausted that have me a break from dreaming. So far I have not ben able to go dreamles again, but praying done day I will! <br /><br />If I find any thing new out about us poor tormented dreamers, I will certainly post it here!Auntlello1https://www.blogger.com/profile/11790967892922212438noreply@blogger.comtag:blogger.com,1999:blog-1934263569705643558.post-3758032140267872502011-11-18T09:53:16.345-08:002011-11-18T09:53:16.345-08:00I have the same problem. Sometimes I will constant...I have the same problem. Sometimes I will constantly dream and wake up every hour or two feeling paralyzed by fatigue. So I fall back asleep only to dream more. I'll just keep waking a dreaming sometimes up to 12-14 hours. I finally get up because I'm usually sore from lying for so long, and I still feel tired. Doctors just tell me I'm depressed and try to give me pills. What do you think about having a study of brain activity during short naps where we're supposed to be dreamless?Anonymousnoreply@blogger.com